ABSTRACT: Objective: To describe the family dynamics and the social support network for families of children with special needs of multiple, complex and continuous care. Methods: A descriptive study of a qualitative approach, carried out in Maringá - PR, having as theoretical and methodological refere...
ABSTRACT Objectives: to discuss the (in)visibility of children with special healthcare needs and their families in the Primary Health Care scenario. Methods: experience report about the difficulties faced by researchers from different regions of Brazil to locate children with special healthcare needs i...
ABSTRACT Objectives: to discuss the (in)visibility of children with special healthcare needs and their families in the Primary Health Care scenario. Methods: experience report about the difficulties faced by researchers from different regions of Brazil to locate children with special healthcare needs i...
ABSTRACT Objective: To describe the challenges of family caregivers of children with special needs of multiple, complex and continuing care at home. Methods: Qualitative study based on the theoretical framework of the Patient and Family-Centerd Care (PFCC). We interviewed eleven family caregivers from ...
Objetivo: apreender as estratégias utilizadas por familiares cuidadores para promover o bem-estar de crianças com câncer em tratamento quimioterápico. Método: estudo qualitativo, descritivo e exploratório, realizado com sete familiares de crianças com câncer em tratamento quimioterápico. Os dado...
Esta pesquisa objetivou identificar a vulnerabilidade familiar das crianças com necessidades especiais de cuidados múltiplos, complexos e contínuos. Trata-se de estudo transversal, realizado com famílias de 68 crianças. Os dados foram coletados no período de junho a setembro de 2015, por meio de en...
